Estimada Dra. Solé:
Muchas gracias. El PubMed ya lo había intentado. Y también ORPHANET, SIERE, MEDLINE, MYELIN.ORG, NINDS... Buscaré donde Vd. me indica. Pero lo veo muy complicado. El hallazgo (en RMN de 3 Teslas o "alta resolución") ha sido una "pequeña displasia cortical en el hemisferio izquierdo" acompañado del retraso en la mielinización. Si la displasia la esperaba (ésta ha sido la 6ª resonancia hecha a mi hijo, y era evidente que algo tenía que haber ahí, en el H.I., pues las ciento y pico primeras crisis se produjeron en el hemilado contralateral...), el retraso en la mielinización no. Y esto me preocupa, porque al ser un signo neurodegenerativo... Me veo ingeniándomelas con el "aceite de Lorenzo" y similares, o más o menos con el mismo fin.
Un neuropediatra, excelente, ya me ha referido que la displasia explica las crisis refractarias en mi hijo, pero no el retraso madurativo. Así que, rellenando huecos, viene a decirme indirectamente que hay algo más, y que ese retraso en la mielinización va a ser un sólido indicio de ese "algo más". Otra neuropediatra, también excelente, no ha querido pronunciarse siquiera, remitiéndome a un tercero que fue el que prescribió la prueba. En fin, que me temo que estemos dando con el nombre del "monstruo"...
Si se le ocurre algo más, no dude en hacérmelo saber.
Muy cordialmente.
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Julio |
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1095 |
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1022 |
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906 |
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979 |
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795 |
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898 |
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835 |
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1063 |
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903 |
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770 |
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784 |
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717 |
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1018 |
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755 |
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847 |
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739 |
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699 |
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604 |
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717 |
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921 |
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730 |
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671 |
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824 |
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892 |
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793 |
13-December-2008 20:01 |
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756 |
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716 |
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717 |
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719 |
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785 |
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645 |
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803 |
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910 |
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817 |
18-November-2009 14:27 |
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1032 |
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832 |
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1214 |
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isabel |
722 |
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828 |
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836 |
29-May-2009 14:51 |
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843 |
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745 |
30-June-2009 23:36 |
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760 |
01-July-2009 15:57 |
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910 |
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andrea |
950 |
21-July-2009 05:35 |
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Dr.Jaume Antich |
838 |
22-July-2009 10:13 |
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673 |
23-August-2009 08:37 |
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Maite Solé |
662 |
24-August-2009 13:09 |
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andrea |
778 |
28-September-2009 01:33 |
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Dr.Jaume Antich |
800 |
29-September-2009 10:35 |
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Maribel |
741 |
14-October-2009 10:15 |
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eli |
827 |
19-October-2009 15:29 |
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eli |
787 |
19-October-2009 15:52 |
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judith |
801 |
20-October-2009 11:57 |
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eli |
920 |
20-October-2009 12:00 |
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Dr.Jaume Antich |
879 |
21-October-2009 23:33 |
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Dr.Jaume Antich |
874 |
27-October-2009 17:53 |
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Dr.Jaume Antich |
892 |
27-October-2009 17:54 |
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victoria |
889 |
06-December-2009 19:26 |
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victoria |
909 |
08-December-2009 03:44 |
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Dr.Jaume Antich |
777 |
08-December-2009 12:12 |
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anna |
737 |
27-January-2010 17:56 |
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Dr.Jaume Antich |
900 |
28-January-2010 12:15 |
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Sandra Marín |
1220 |
29-January-2010 05:38 |
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Dr.Jaume Antich |
822 |
02-February-2010 17:09 |
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yoslavo |
742 |
01-February-2010 22:22 |
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Dr.Jaume Antich |
974 |
02-February-2010 19:19 |
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estela |
747 |
19-February-2010 17:06 |
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Dr.Jaume Antich |
675 |
22-February-2010 21:25 |
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Teresa mendoza |
800 |
22-April-2010 21:21 |
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Dr.Jaume Antich |
805 |
26-April-2010 19:37 |
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Dr.Jaume Antich |
736 |
26-April-2010 19:38 |
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Dr.Jaume Antich |
809 |
04-May-2010 10:47 |
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Christian |
796 |
23-April-2010 16:18 |
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Christian |
769 |
23-April-2010 16:19 |
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Dr.Jaume Antich |
991 |
06-May-2010 21:20 |
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noelia |
1017 |
20-May-2010 23:33 |
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Dr.Jaume Antich |
849 |
21-May-2010 12:48 |
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noelia |
742 |
21-May-2010 20:08 |
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Dr.Jaume Antich |
897 |
21-May-2010 20:40 |
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Amador Villegas |
779 |
31-May-2010 18:34 |
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Dr. Jaume Antich |
793 |
01-June-2010 08:50 |
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linda |
873 |
15-June-2010 16:07 |
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Dr.Jaume Antich |
782 |
16-June-2010 12:27 |
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Jose |
1092 |
20-August-2010 08:16 |
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Dr. Jaume Antich |
836 |
21-August-2010 19:05 |
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MIRTA |
737 |
27-September-2010 12:27 |
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MIRTA |
699 |
27-September-2010 12:45 |
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Dr. Jaume Antich |
736 |
04-October-2010 10:04 |
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MIRTA |
790 |
27-September-2010 12:50 |
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Dr. Jaume Antich |
791 |
04-October-2010 10:05 |
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george |
712 |
05-October-2010 23:35 |
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Dr.Jaume Antich |
749 |
07-October-2010 07:30 |
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suva |
979 |
29-October-2014 09:32 |
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marina |
741 |
08-November-2010 21:30 |
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Dr.Jaume Antich |
739 |
09-November-2010 08:37 |
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pablo |
770 |
24-April-2012 17:41 |
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Ingrid |
954 |
11-November-2010 02:30 |
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Dr.Jaume Antich |
812 |
11-November-2010 19:01 |
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Rene I. |
1068 |
11-November-2010 02:31 |
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Dr.Jaume Antich |
959 |
11-November-2010 06:57 |
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sandreas@hotmail.com |
745 |
05-April-2011 07:34 |
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Laura |
818 |
28-January-2011 12:16 |
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Laura |
739 |
28-January-2011 12:19 |
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salvador |
710 |
11-February-2011 04:31 |
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Dr.Jaume Antich |
765 |
12-February-2011 06:58 |
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eliza |
805 |
18-March-2011 16:38 |
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giovana |
1073 |
24-March-2011 16:47 |
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Dr.Jaume Antich |
643 |
03-April-2011 17:51 |
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giovana |
723 |
04-April-2011 15:56 |
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maria paz |
851 |
26-August-2011 19:41 |
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andreina |
824 |
30-January-2013 02:18 |
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MARCELA sALDARRIAGA |
966 |
24-May-2011 23:20 |
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Rubiela Sanchez |
825 |
13-June-2011 02:18 |
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marta |
736 |
29-December-2011 11:17 |
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geli |
702 |
02-July-2011 16:26 |
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Mari |
895 |
26-September-2011 03:12 |
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Mari |
1188 |
26-September-2011 03:13 |
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Mari |
869 |
26-September-2011 03:14 |
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ERIKA |
978 |
03-November-2011 00:26 |
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Rocio |
765 |
03-November-2011 22:19 |
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angela |
818 |
26-August-2013 02:49 |
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eliza |
798 |
24-November-2011 23:15 |
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cecilia |
803 |
06-December-2011 18:44 |
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mari |
807 |
07-March-2012 22:32 |
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laura |
679 |
20-July-2012 17:43 |
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798 |
22-November-2012 19:47 |
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RUTH |
849 |
05-March-2013 20:22 |