Hola amigos, ciertamente es una enfermedad terrible, y mas terrible aun, pensar que puedas heredarla a tus hijos (50%) a esta altura es lo que mas me aterra, a veces prefiero no saberlo. Lei varios articulos en internet, el mejor camino creo yo es la prevencion, es decir valiendose del Diagnóstico Genético Preimplantacional, no se si tenga otro efecto colateral en el bb, pero si puede evitar que tenga PR ya es mucho. En cuanto al tratamiento me entusiasmo mucho el Triptolide por ser un derivado natural, incluso lo busque para comprarlo, pero lamentablemente estudios demuestran mucha toxicidad en roedores, lo ultimo que lei de Tolvaptan tambien es toxico con daño hepatico irreversible. digamos que la parte positiva es q por lo menos ya se sabe cual es el gen y mas o menos el mecanismo que desarrolla nuestra enfermedad, q cuando murio mi padre hace mas de 20 años no se tenia nisiquiera esa informacion, quizas en unos años mas podamos contar con un tratamiento efectivo, la esperanza es lo ultimo que se pierde. un saludo a todos, que dios los bendiga,
Asunto |
Su nombre (no introduzca datos personales) |
Vistas |
Enviado |
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veronica |
1394 |
23-July-2007 22:57 |
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Dr.Jaume Antich |
800 |
24-July-2007 19:39 |
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daniel |
810 |
31-July-2007 23:02 |
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Dr.Jaume Antich |
971 |
02-August-2007 11:22 |
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cecilia |
828 |
18-June-2008 18:55 |
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Dr.Jaume Antich |
720 |
19-June-2008 17:40 |
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CAROLINA OGGERO |
787 |
26-August-2008 18:16 |
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Dr.Jaume Antich |
767 |
29-August-2008 19:58 |
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mabel cavuto |
892 |
17-November-2008 23:11 |
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Dr.Jaume Antich |
847 |
23-November-2008 08:58 |
|
Dr.Jaume Antich |
757 |
23-November-2008 09:38 |
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Soy Jorge |
766 |
08-October-2008 00:53 |
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Soy Jorge |
855 |
08-October-2008 00:54 |
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Dr.Jaume Antich |
766 |
08-October-2008 20:38 |
|
Dr.Jaume Antich |
879 |
08-October-2008 20:35 |
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carmelo cavaleri |
903 |
21-November-2008 20:07 |
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Marcela |
790 |
11-January-2009 01:21 |
|
Dr.Jaume Antich |
761 |
12-January-2009 09:36 |
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carmelo cavaleri |
790 |
27-February-2009 21:08 |
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Marcela |
685 |
12-April-2009 23:02 |
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cristina |
743 |
17-June-2009 20:40 |
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Maite Solé |
776 |
18-June-2009 11:25 |
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Carmelo Cayetano |
677 |
18-July-2009 21:21 |
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Maite Solé |
724 |
19-July-2009 11:14 |
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Carmelo Cayetano |
985 |
31-July-2009 22:41 |
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Maite Solé |
841 |
04-September-2009 18:07 |
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Carmelo Cayetano |
756 |
17-September-2009 05:37 |
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Jove |
671 |
12-January-2011 17:43 |
|
Dr.Jaume Antich |
702 |
13-January-2011 16:28 |
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mary cosatto |
783 |
28-February-2010 22:12 |
|
Dr.Jaume Antich |
651 |
02-March-2010 22:27 |
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CRISTINA |
772 |
17-June-2009 20:45 |
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puri |
721 |
14-July-2009 21:29 |
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Dr.Jaume Antich |
721 |
15-July-2009 17:23 |
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anny. rincon |
793 |
27-August-2009 18:50 |
|
Dr.Jaume Antich |
901 |
27-August-2009 19:18 |
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celeste |
926 |
05-September-2009 17:13 |
|
Dr.Jaume Antich |
837 |
07-September-2009 20:27 |
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Raquel |
843 |
24-October-2009 17:50 |
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Carmelo |
770 |
27-October-2009 16:08 |
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carlos |
766 |
11-February-2010 19:39 |
|
Dr.Jaume Antich |
755 |
12-February-2010 12:11 |
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Noemi Betanzos Moran |
747 |
19-June-2010 18:26 |
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Antonio |
207 |
21-February-2022 18:51 |
|
Dr. Jaume Antich |
313 |
01-March-2022 13:00 |
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Luis |
682 |
18-February-2010 17:48 |
|
Dr.Jaume Antich |
733 |
19-February-2010 18:24 |
|
Dr.Jaume Antich |
728 |
19-February-2010 18:24 |
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nina |
694 |
09-March-2010 19:28 |
|
Dr.Jaume Antich |
887 |
10-March-2010 22:56 |
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nina |
737 |
09-March-2010 19:30 |
|
Dr.Jaume Antich |
672 |
10-March-2010 22:54 |
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gabriela |
938 |
29-March-2010 01:51 |
|
Dr.Jaume Antich |
708 |
30-March-2010 18:33 |
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sebastian |
660 |
12-August-2010 22:05 |
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Mauricio Rojas Sánchez |
779 |
15-May-2010 00:19 |
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BEGOÑA |
772 |
19-May-2010 21:29 |
|
Dr.Jaume Antich |
686 |
20-May-2010 09:48 |
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mauricio |
841 |
27-October-2010 06:04 |
|
Dr.Jaume Antich |
738 |
28-October-2010 09:34 |
|
Celeste |
744 |
18-June-2010 22:40 |
|
Celeste |
733 |
18-June-2010 22:44 |
|
Dr.Jaume Antich |
696 |
19-June-2010 09:14 |
|
Celeste |
659 |
18-June-2010 22:45 |
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CLARICE |
697 |
27-August-2010 06:39 |
|
Dr. Jaume Antich |
723 |
28-August-2010 18:53 |
|
CLARICE |
786 |
27-August-2010 06:43 |
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sil |
677 |
04-September-2010 21:01 |
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Carmelo |
781 |
25-September-2010 08:56 |
|
Dr. Jaume Antich |
736 |
27-September-2010 17:46 |
|
Marcela |
735 |
26-September-2010 19:41 |
|
Marcela |
790 |
26-September-2010 19:44 |
|
Dr. Jaume Antich |
733 |
27-September-2010 11:41 |
|
Carmelo |
813 |
29-September-2010 07:07 |
|
blanca |
1114 |
06-October-2010 20:37 |
|
Dr.Jaume Antich |
942 |
07-October-2010 05:24 |
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luisce |
742 |
20-November-2010 14:11 |
|
Dr.Jaume Antich |
706 |
21-November-2010 19:01 |
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Nuria Cornet |
810 |
20-April-2011 20:47 |
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Nuria Cornet |
840 |
20-April-2011 20:47 |
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JOR |
784 |
19-July-2011 04:30 |
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jordi |
952 |
17-August-2011 16:26 |
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Luis |
915 |
23-August-2011 04:23 |
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huaracino |
821 |
23-August-2011 04:27 |
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spc |
706 |
04-September-2011 18:37 |
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Martin Jimenez Ramos |
802 |
19-October-2011 12:02 |
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Rafa |
725 |
27-January-2012 08:08 |
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clara |
812 |
16-March-2012 00:11 |
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silvia |
984 |
08-May-2012 00:24 |
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Cynthia |
745 |
10-August-2012 15:37 |
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Cynthia |
765 |
10-August-2012 15:39 |
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Cynthia |
837 |
10-August-2012 15:42 |
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princesita |
840 |
30-October-2012 17:39 |
|
DMR |
922 |
27-November-2012 15:57 |
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ivan |
692 |
19-December-2012 03:34 |
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Armando Humphrey |
1089 |
03-February-2013 15:54 |
|
maria acosta alvarez |
885 |
13-February-2013 06:05 |
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TERESITA GONZALEZ |
573 |
18-February-2013 20:30 |
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vanesa |
753 |
12-June-2013 17:16 |
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sandy |
750 |
01-December-2013 20:08 |
|
sandy |
783 |
01-December-2013 20:32 |
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victor |
991 |
14-December-2013 22:51 |
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JOSE |
799 |
26-March-2014 16:57 |
|
JOSE |
865 |
26-March-2014 17:08 |
|
JOSE |
862 |
26-March-2014 17:17 |
|
JOSE |
953 |
26-March-2014 17:26 |
|
JOSE |
787 |
26-March-2014 17:57 |
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yelitza |
595 |
30-July-2007 22:22 |
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veronica |
771 |
03-August-2007 20:57 |
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sabrina |
705 |
17-August-2007 20:15 |
|
Dr.Jaume Antich |
799 |
18-August-2007 21:54 |
|
mabel cavuto |
800 |
17-November-2008 23:37 |
|
Dr.Jaume Antich |
672 |
23-November-2008 08:57 |
|
alex tejeria |
711 |
21-August-2009 18:55 |
|
Dr.Jaume Antich |
642 |
24-August-2009 17:21 |
|
celeste |
791 |
07-September-2009 00:09 |
|
laura |
739 |
07-November-2009 20:51 |
|
Dr.Jaume Antich |
687 |
09-November-2009 10:32 |
|
José Luis García |
609 |
15-December-2009 19:19 |
|
Dr.Jaume Antich |
693 |
17-December-2009 07:06 |
|
vanina cena |
740 |
10-February-2010 21:23 |
|
Dr.Jaume Antich |
703 |
11-February-2010 16:39 |
|
Horacio Sandoval |
594 |
14-June-2010 22:00 |
|
Dr.Jaume Antich |
638 |
15-June-2010 11:38 |
|
vanessa |
780 |
06-April-2011 01:47 |
|
vanessa |
600 |
06-April-2011 01:52 |
|
vanessa |
726 |
06-April-2011 01:56 |
|
vanessa |
688 |
06-April-2011 02:02 |
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MALENA |
699 |
09-April-2011 23:55 |
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liliana cardozo |
747 |
20-July-2011 16:12 |
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tatiana |
710 |
19-January-2012 02:52 |
|
jorge |
904 |
27-November-2009 01:26 |
|
Dr.Jaume Antich |
694 |
30-November-2009 09:03 |
|
Marcela |
663 |
25-January-2010 22:33 |
|
mauricio |
659 |
27-October-2010 06:25 |
|
Dr.Jaume Antich |
713 |
28-October-2010 09:36 |
|
vladimir |
701 |
06-April-2011 17:47 |
|
ruben |
736 |
25-November-2013 00:59 |
|
Ruben Dario Ortiz |
523 |
03-May-2017 16:35 |
|
mauricio |
880 |
27-October-2010 06:42 |
|
Dr.Jaume Antich |
706 |
28-October-2010 09:37 |
|
princesita |
771 |
30-October-2012 17:42 |
|
ivan |
827 |
19-December-2012 03:43 |
|
Ruben |
723 |
03-May-2017 17:38 |